Six-year-old Sienna’s parents have fought the NDIS every year of her life for funding that keeps her alive (opens in new tab)

Sienna has cerebral palsy, cannot talk and needs her lungs suctioned every few minutes. Her mother June ‘can tell you exactly what every cent’ in her NDIS plan is forGet our , or June’s six-year-old daughter Sienna* is one of the more profoundly disabled people on the national disability insurance scheme.Sienna has cerebral palsy and a number of comorbidities. She cannot talk, she cannot sit unassisted, she is fed through a tube, she is incontinent. She has two types of lung disease and is on...