hey so, i’m 17 F this year and recently my right leg would flare up whenever i walked too much and my knee would shake, resulting in me struggling to walk, and when i squat down slightly, my knee would shake constantly until i lose my balance and fall forward, fyi this is episodic and usually it lasts for 2-3 hrs, 6 hrs to fully recover (walking properly), a few days to recover the pain in general
when i was 8 i had temporary paralysis, then my parents brought me to a general practitioner and he diagnosed me for having viral myositis, as the paralysis went away after but after that, when i was 9-11 years old, i’d have that bittersweet ache on my lower thighs for both legs every. single. night. i am not sure if it is related to this, because it stopped and it became an every year thin…
hey so, i’m 17 F this year and recently my right leg would flare up whenever i walked too much and my knee would shake, resulting in me struggling to walk, and when i squat down slightly, my knee would shake constantly until i lose my balance and fall forward, fyi this is episodic and usually it lasts for 2-3 hrs, 6 hrs to fully recover (walking properly), a few days to recover the pain in general
when i was 8 i had temporary paralysis, then my parents brought me to a general practitioner and he diagnosed me for having viral myositis, as the paralysis went away after but after that, when i was 9-11 years old, i’d have that bittersweet ache on my lower thighs for both legs every. single. night. i am not sure if it is related to this, because it stopped and it became an every year thing, tho it happens maybe twice a year or smth after i turned 11. but when i have the attacks now, sometimes my muscles would feel tingly before it starts to have muscle weakness and twitching, or it would ache so badly before the muscle weakness, and me taking difnal-k (a painkiller) somehow immediately cures the problem. i have no idea what this is and i need help on my next move.
i had went to many GPs and they prescribed me vitamin b-12 pills with pills for nerve improvements (i didn’t take any of these since i immediately got referred to the neurologist) hence one day i went to a different doctor, they suspected me having hyperkalemic periodic paralysis and referred me to a neurologist around my area. i went there and did blood tests, mri scan, and even emg & ecg, all while my legs were perfectly fine. but no results have shown. and i don’t even know if they used my blood to detect creatine kinase levels, or just a normal blood test, since you didn’t need to fast for this blood test.
and my neurologist after ruling out most diseases, considering that my tests all came back normal, said it was “stress” and gave me meds like neurobion and blood circulation pills. yesterday (after 2 weeks since my last visit) i went back since i couldn’t walk properly again and fell twice, did a blood test while i was recovering and said there’s nothing wrong w me and that it’s just “stress”, because i myself see a psychiatrist and have anxiety, but i believe there is NO WAY that anxiety could cause all this. TW!! -> [fyi the pills i take from my psych are mirtazapine, ritalin (dropped it ever since i started having bloating issues) and aripipzole (dropped it immediately because the dose was too high, and it was just for ocd)]
i even went to a traditional chinese medicine (tcm) doctor for acupuncture, he did it on my upper thigh today since it was hurting badly there, and he said i sprained my tendons on my feet by lifting it up whenever i couldn’t walk, even said it isn’t serious, but the thing is that it isn’t the root cause though.. he was just treating whatever was visible—a swollen knee and sprained tendon, or maybe i’m just stubborn.
to me it felt like no one takes me seriously, yk? i don’t even know if this is a neuromuscular issue or neuropathy at this point. does anyone have any idea? what should i do next? i need serious help! i’m in secondary school having finals now :(( i sometimes even need to use a walking stick to walk whenever i have those flares.. my dad believes that this is serious and could cause serious problems, because just by me walking too much will tire my legs out resulting in muscle weakness and twitching, or sometimes constant pain
i was wondering if anyone knows what to do next? tl;dr leg muscles get weak whenever i overuse it and struggle to walk